As I've popped my head in upthread regarding my father's potentially MRNA serum-induced arrhythmia, I figured I may as well go all in and give the update on my daughter's condition as well. A little over a year ago, I wrote about how my infant daughter was having paralytic episodes, apparently due to exposure to shedding-- after being touched on the foot by a well meaning elderly neighbor who had just been vaccinated, who reached out for an unwanted "aw she's so cute" as my wife was pushing the baby cart down our street.
At the time, this resulted within hours in some shingles-like sores on my daughter's foot, and the aforementioned paralysis. In time, we came to learn that she has "Alternating Hemiplegia of Childhood" (AHC), a very rare (1 in a million) and poorly understood neurological disease that strikes first in childhood ("of Childhood"), results in paralysis of the left or right side of the body ("Hemiplegia"), and bizarrely alternates sides every time she has a paralytic episode ("Alternating"). She usually spends about 3 days out of every week and a half in a hemiplegic state; occasionally longer, as it does happen sometimes that one episode connects directly to another, if there is a particular source of stress. Her cognitive and physical development have both been substantially impeded by her condition.
Back when I wrote here last, I theorized that perhaps her exposure to the vaccine shedding had caused her condition. At this point, while I can't rule that out entirely, as hemiplegia is indeed a known side effect of the Covid vaccines, and it's possible in some cases that it was actually a first case of AHC, I think that is unlikely now: I suspect that if such a side effect happened at any kind of statistically significant rate, I probably would have heard about it at least anecdotally. I guess I know for sure 10 years down the road if it turns out that right around now there was a big spike in AHC occurrences. But for now I'll assume that it wasn't the cause of the condition outright.
However I think it's safe to say that the shedding was certainly the cause of my daughter's first hemiplegia episode. I never actually saw the neighbor who touched my daughter's foot again. Why not? Well, part of it is that we moved to a new neighborhood several months later. But even before then I don't believe I ever saw him after that incident. When our house move was imminent, my wife and I saw his wife and asked her about him, as we weren't going to have a chance to say goodbye. She told us in confidence that he hadn't been out of the house in over two months, as he had a bad case of shingles and couldn't go out in public. Ouch. I feel bad for him, and I hope he is well now.
That was a shock to learn, though. The exact condition that we suspected our daughter had been exposed to via his shedding, it turned out he got a much more severe case of it. At least for my daughter, when she developed the sores on her foot, they were confined to an area about the size of a nickel, disappeared after a couple of days. Still, it was enough, evidently, to put stress on her system such that it also the first expression of her AHC.
I mean, who knows. Though AHC is considered a genetic disease, its causes and the reasons it expresses in some people and not others is very poorly understood. Maybe she would never have developed AHC at all if she hadn't been exposed to shedding at that particularly fragile and overly receptive time for her body's immune system. Who can say? Not I, certainly. But still, I suspect it's not a particularly common result of such exposure.
Anyway, since then we've made some adjustments to our lives. It's not very pleasant when one's daughter goes through tough physical times like that, but she and we have lived with her condition for a year now and have largely adjusted to the experience. (Though there was a particularly heartbreaking period a few months back where my daughter really seemed to cotton on to something really being bad about her condition, and for a while took to lifting up her paralyzed arm with her good one and letting it drop, limp and useless.) Modern medicine has no cures on offer for AHC. We are pursuing various alternative medicine strategies, and we haven't yet given up hope that her condition might be cured. Apparently occasionally AHC cases spontaneously disappear, and our hope is that could be the case for our daughter too. I wonder how often such cases are actually the result of families pursuing alternative medicine, and Science not recording the reason when healing actually occurs (because clearly there couldn't actually be any effective therapies in alternative medicine...)
Anyhow. I'm sorry I basically dropped out without updating again a year ago. That's my update for now.
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branchandroot
Update on my daughter
Date: 2022-12-07 05:25 pm (UTC)As I've popped my head in upthread regarding my father's potentially MRNA serum-induced arrhythmia, I figured I may as well go all in and give the update on my daughter's condition as well. A little over a year ago, I wrote about how my infant daughter was having paralytic episodes, apparently due to exposure to shedding-- after being touched on the foot by a well meaning elderly neighbor who had just been vaccinated, who reached out for an unwanted "aw she's so cute" as my wife was pushing the baby cart down our street.
At the time, this resulted within hours in some shingles-like sores on my daughter's foot, and the aforementioned paralysis. In time, we came to learn that she has "Alternating Hemiplegia of Childhood" (AHC), a very rare (1 in a million) and poorly understood neurological disease that strikes first in childhood ("of Childhood"), results in paralysis of the left or right side of the body ("Hemiplegia"), and bizarrely alternates sides every time she has a paralytic episode ("Alternating"). She usually spends about 3 days out of every week and a half in a hemiplegic state; occasionally longer, as it does happen sometimes that one episode connects directly to another, if there is a particular source of stress. Her cognitive and physical development have both been substantially impeded by her condition.
Back when I wrote here last, I theorized that perhaps her exposure to the vaccine shedding had caused her condition. At this point, while I can't rule that out entirely, as hemiplegia is indeed a known side effect of the Covid vaccines, and it's possible in some cases that it was actually a first case of AHC, I think that is unlikely now: I suspect that if such a side effect happened at any kind of statistically significant rate, I probably would have heard about it at least anecdotally. I guess I know for sure 10 years down the road if it turns out that right around now there was a big spike in AHC occurrences. But for now I'll assume that it wasn't the cause of the condition outright.
However I think it's safe to say that the shedding was certainly the cause of my daughter's first hemiplegia episode. I never actually saw the neighbor who touched my daughter's foot again. Why not? Well, part of it is that we moved to a new neighborhood several months later. But even before then I don't believe I ever saw him after that incident. When our house move was imminent, my wife and I saw his wife and asked her about him, as we weren't going to have a chance to say goodbye. She told us in confidence that he hadn't been out of the house in over two months, as he had a bad case of shingles and couldn't go out in public. Ouch. I feel bad for him, and I hope he is well now.
That was a shock to learn, though. The exact condition that we suspected our daughter had been exposed to via his shedding, it turned out he got a much more severe case of it. At least for my daughter, when she developed the sores on her foot, they were confined to an area about the size of a nickel, disappeared after a couple of days. Still, it was enough, evidently, to put stress on her system such that it also the first expression of her AHC.
I mean, who knows. Though AHC is considered a genetic disease, its causes and the reasons it expresses in some people and not others is very poorly understood. Maybe she would never have developed AHC at all if she hadn't been exposed to shedding at that particularly fragile and overly receptive time for her body's immune system. Who can say? Not I, certainly. But still, I suspect it's not a particularly common result of such exposure.
Anyway, since then we've made some adjustments to our lives. It's not very pleasant when one's daughter goes through tough physical times like that, but she and we have lived with her condition for a year now and have largely adjusted to the experience. (Though there was a particularly heartbreaking period a few months back where my daughter really seemed to cotton on to something really being bad about her condition, and for a while took to lifting up her paralyzed arm with her good one and letting it drop, limp and useless.) Modern medicine has no cures on offer for AHC. We are pursuing various alternative medicine strategies, and we haven't yet given up hope that her condition might be cured. Apparently occasionally AHC cases spontaneously disappear, and our hope is that could be the case for our daughter too. I wonder how often such cases are actually the result of families pursuing alternative medicine, and Science not recording the reason when healing actually occurs (because clearly there couldn't actually be any effective therapies in alternative medicine...)
Anyhow. I'm sorry I basically dropped out without updating again a year ago. That's my update for now.