From a news article about this today, it seems there are already several mandatory state registries. Most operate along the same lines as birth defect registries -- birth defects are reported so that in theory the state could offer help to affected families and could spot clusters. But autism, especially high-functioning, late-diagnosed autism, is not the same as a birth defect. Some of these registries are scary. From this story:
though some are voluntary, others are mandatory, usually requiring doctors to report all children under 18 (or 22!) whom they diagnose. But West Virginia's has since 2004 REQUIRED newly diagnosed people of ALL ages to register. Just think of that. Totalitarian much? If a 50-year-old gets a new psych label, is knowing that really going to help the state do anything helpful? And that elides the question of the accuracy of new labels in adults, with constantly expanding diagnostic criteria.
Re: Lupron
https://www.msn.com/en-us/health/other/states-with-mandated-autism-databases-as-rfk-jr-s-registry-criticized/ar-AA1Dts7K
though some are voluntary, others are mandatory, usually requiring doctors to report all children under 18 (or 22!) whom they diagnose. But West Virginia's has since 2004 REQUIRED newly diagnosed people of ALL ages to register. Just think of that. Totalitarian much? If a 50-year-old gets a new psych label, is knowing that really going to help the state do anything helpful? And that elides the question of the accuracy of new labels in adults, with constantly expanding diagnostic criteria.